Washington State Parkinson Disease Registry
The Washington State Parkinson Disease Registry (WPDR) was created in May 2007 to facilitate Parkinson disease research by maintaining a list of people in Washington state, who have Parkinson disease, and are interested in Parkinson disease research.[1] Parkinson disease researchers request the WPDR notify its members of potential research opportunities. The WPDR executive board then evaluates the requesting researcher's study protocol and notifies suitable registry members of the research opportunity.
The intent of the registry is to increase membership in high quality Parkinson disease research studies, while reducing the time and money necessary to recruit interested subjects.
Sponsorship
The Washington State Parkinson Disease Registry is sponsored by the Washington State Department of Health, a group of Washington state physicians at the University of Washington Department of Neurology and Parkinson disease advocacy groups including the Washington State chapter of the American Parkinson Disease Association, Northwest Collaborative Care, Northwest Parkinson's Foundation and Parkinson's Resources of Spokane.
References
- ↑ Kim HM, Samii A, Martinez E, Richards G, Zabetian C, Leverenz JB (2007) The Washington Parkinson disease registry (WPDR): A state-wide research registry. Mov Disord 22:17