Patient Innovation

Patient Innovation
Type of site
Database
Available in Multilingual
Owner Católica Lisbon School of Business & Economics
Created by Pedro Oliveira
Revenue Non-profit
Slogan(s) Sharing solutions, improving life
Website patient-innovation.com
Registration Optional
Launched 7 February 2014
Current status Active

Patient Innovation is an online platform dedicated to the sharing of solutions developed by individuals afflicted with a health disorder, as well as by their caregivers. The website also provides rating tools and options to report and track modified solutions that these individuals develop.

History

Patient Innovation started as an academic research project aimed to study user innovation [1] by patients and their non-professional caregivers,[2] funded by The Portuguese Science and Technology Foundation (FCT),[3] Carnegie-Mellon Portugal Program[4] and Pieter Pribila Foundation.[5] The project was founded by Prof. Pedro Oliveira from Católica Lisbon School of Business & Economics.

As one of the project's outcomes, the online platform was launched on February 7, 2014, at an inaugural event in Lisbon, Portugal.[6] The project is supported by a number of distinguished individuals, including Nobel Laureate Sir Richard J. Roberts,[7] Eric von Hippel, Nobel Laureate Aaron Ciechanover, Katherine Strandburg, Robert Langer, and Lee Fleming – who serve on the Advisory Board.

Administration

Patient Innovation is institutionally located at Católica Lisbon School of Business & Economics, and is led by Prof. Pedro Oliveira (Catolica-Lisbon) and Prof. Helena Canhão from the University of Lisbon School of Medicine. The project team includes medical doctors from University of Lisbon School of Medicine.

Patient Innovation terms of use include the agreement that users do not include the content that produce "Self-Harm: We remove any promotion or encouragement of self-mutilation, eating disorders or hard drug abuse". To enforce the terms of service, all the submitted solutions go through a screening by the project’s medical team, who check whether for submission complies with the terms and services advertised on the Patient Innovation site. Only the validated solutions are posted on the platform. In 24 months, over 500 solutions developed by patients, (non-professional) caregivers or collaborators from over 30 countries were submitted, curated and shared to improve the lives of many other who struggle with different health conditions.

In February 2016, Patient Innovation was one of eleven innovations from all over the world distinguished by the office of Prime Minister of the United Arab Emirates (UAE) to be featured at the 4th World Government Summit, in Dubai (February 8 – 10 2016).[8] The World Government Summit was a global event that gathered more than 3000 attendees from over 90 countries. Patient Innovation had a prominent presence in the summit, where a number of solutions were on display.

The London Science Museum has selected this project as one of seven case studies to be featured in the exhibition 'Beyond the Lab: The DIY Science Revolution' which openned July 7, 2016 and will visit 29 european countries until the end of 2018.[9]

Patient Innovation Awards

Patient Innovation promotes the annual Patient Innovation Awards for patients, caregivers and collaborators who have developed innovative solutions to cope with the challenges of their health condition, to assist others they care about, or in some cases, to help people they don't even know. The winners of the 1st Patient Innovation Award were announced in February 2015. They are:

The 1st Patient Innovation Award Ceremony was held in Lisbon on July 13, 2015 at the Calouste Gulbenkian Foundation. European Commissioner Carlos Moedas was one of the distinguished guests.[11]

The winners of the 2nd Patient Innovation Award were announced in February 2016. They are:[12]

Research

The team conducts research on the role of patients of chronic diseases, and their caregivers, in creating new solutions to help them cope with their health conditions. Recently they administered a survey over phone to 500 rare disease patients/caregivers with the following objectives: to measure frequency of patient innovation in a population of rare diseases patients; to measure efforts by patients to share their solutions with others; to explore which factors drive patients to come-up with solutions and share them with others. The solutions reported by patients were validated for their novelty by two medical professionals. 40 individuals (8% of sample) reported solutions that they personally find valuable, and that are also evaluated as novel by expert medical evaluators. If anything like this fraction of innovators holds for the overall population of hundreds of millions of people world-wide estimated to be afflicted by rare diseases, patients and their caregivers may be a tremendous potential resource to improve management and care for many who are similarly afflicted.[13][14]

References

  1. Eric von Hippel. "The sources of innovation", Oxford University Press, New York, 1988.
  2. "Orphanet Journal of Rare Diseases | Full text | Innovation by patients with rare diseases and chronic needs". Ojrd.com. Retrieved 2015-07-11.
  3. "FCT - Fundação para a Ciência e a Tecnologia" (in Portuguese). Fct.pt. 2015-05-27. Retrieved 2015-07-11.
  4. "The Patient Innovation Launch Event". Cmuportugal.org. 2014-02-07. Retrieved 2015-07-11.
  5. "Visualizing User Innovation in Health Care | Peter Pribilla-Stiftung". Clicresearch.org. Retrieved 2015-07-11.
  6. "[Research] Crowdsourced Medical Innovation to be Launched on 2/7 | Coleman Fung Institute for Engineering Leadership". Funginstitute.berkeley.edu. Retrieved 2015-07-11.
  7. 01/08/2015 2:54 pm EST. "A Social Side of Science With Rich Roberts | Vanessa Kuhlor". Huffingtonpost.com. Retrieved 2015-07-11.
  8. EDGE OF GOVERNMENT, World Government Summit 2016 site
  9. https://patient-innovation.com/beyond-the-lab
  10. Portugal. "Announcement of the Winners of the 1st Patient Innovation Awards". Us3.campaign-archive2.com. Retrieved 2015-07-11.
  11. Speech by EU commissioner Carlos Moedas
  12. http://us3.campaign-archive1.com/?u=7ed42017b5a721b88e1910afb&id=6685ba0bf3&e=a4dde9b02c
  13. Oliveira, P., Zejnilovic, L., Canhão, H. and von Hippel, E. (2015) "Patient innovation under rare diseases and chronic needs". Orphanet Journal of Rare Diseases 2015, 10 (41)
  14. Zejnilovic, L., P. Oliveira, H. Canhão (Forthcoming), "Innovations by and for the patients: and how can we integrate them into the future health care system" in Boundaryless Hospital (edited book) by Springer

External links

This article is issued from Wikipedia - version of the 11/27/2016. The text is available under the Creative Commons Attribution/Share Alike but additional terms may apply for the media files.