Consumers United for Evidence-based Healthcare
 | |
| Formation | 2003 |
|---|---|
| Type | National |
| Purpose | Empowering consumers to make the best used of evidence-based healthcare |
| Headquarters | Baltimore, MD |
Official language | English |
| Website | www.us.cochrane.org/CUE |
Consumers United for Evidence-based Healthcare (CUE) is a coalition of consumer groups interested in evidence-based healthcare. It was formed in 2003.[1]
CUE provides leadership to other efforts aimed at involving patients in the research process, strengthening the voice of consumers in healthcare research, which has been called for over two decades[2] but which has not always been successfully implemented free of commercial influence.[3] By creating opportunities for networking and learning, similar to those available to health professionals, CUE members can be empowered and have an ongoing source of information and tools about health issues of concern. This would, at least in theory, give the member groups an edge in advocacy activities.
Since its establishment, CUE members have been asked to testify to national committees, have contributed letters to the biomedical literature, sit on national professional society steering groups and advisory panels in addition many other contributions.[4][5]
CUE Member Organizations
As a condition of membership. CUE members may not receive the majority of the funding from commercial sources and agree to attend an annual CUE meeting to set priorities, receive training, and collaborate with consumer and health advocates throughout the United States. CUE membership is currently about 40 member groups; the earliest members include the National Breast Cancer Coalition, Consumer Reports, and the Black Women’s Health Imperative, among others.
- Annie Appleseed Project
- Association for Pelvic Organ Prolapse Support
- Autism Society of Colorado
- Black Women’s Health Alliance
- Black Women’s Health Imperative
- California Breast Cancer Organizations (CABCO)
- Center for Medical Consumers
- Center for Science in the Public Interest
- Cherab Foundation
- Childbirth Connection Programs at the National Partnership for Women & Families
- Children With Diabetes Foundation
- Citizens for Patient Safety
- Consumer Reports
- Faces and Voices of Recovery
- Families USA
- Homebirth Summit Consumer Engagement Task Force
- Lamaze International
- LymeDisease.org
- Mothers Against Medical Error
- National Alliance for Caregiving
- National Breast Cancer Coalition
- National Center for Health Research
- National Center for Transgender Equality
- National Coalition for Lesbian, Gay, Bisexual and Transgender Health
- National Committee to Preserve Social Security and Medicare
- National Consumers League
- National Council on Aging
- National Environment Education Foundation
- National Mental Health Consumers’ Self-Help Clearinghouse
- National Partnership for Women & Families
- National Vaccine Information Center
- National Women’s Health Network
- Our Bodies Ourselves
- Ovarian Cancer Advocacy Alliance of San Diego
- Rhode Island Breast Cancer Coalition
- SafeMinds
- TMJ Association, LTD
- Young Survival Coalition
Conferences and Training
CUE has hosted two Summit conferences, in 2007 and 2010, attended by advocacy groups and others.[6] CUE also holds one membership meeting each year, in Washington, DC, with communication via mail and e-mail between meetings and makes its slidecasts from the meeting available to the public.[7]
All of CUE’s training materials are available free of charge to the public, for example, training about critical appraisal & evidence-based healthcare.[8] CUE also hosts social networking through Facebook groups and Twitter, and CUE contributes its views and support to international projects such as AllTrials. The USCC hosts CUE’s website and resource offerings[9] and coordinates its program of matching educated consumers with researchers and policy makers who wish to incorporate consumers into their programs, for example guidelines developers.[10]
See also
External links
References
- ↑ "Consumers United for Evidence-Based Healthcare (CUE)". US Cochrane Center. Retrieved 31 August 2014.
- ↑ Dickersin, K; Schapner, L (1996). "Man-Made Medicine: Women's Health, Public Policy, and Reform". In Moss, KL. Reinventing medical research (1st ed.). Durham, NC: Duke University Press Books. ISBN 0822318164.
- ↑ Kreis, J; Puhan, MA; Schüemann, HJ; Dickersin, K (2013). "Consumer involvement in systematic reviews of comparative effectiveness research". Health Expect. 16 (4): 323–337. doi:10.1111/j.1369-7625.2011.00722.x. PMID 22390732.
- ↑ "Institute of Medicine Presentation to Committee on Determination of Essential Health Benefits" (PDF). Institute of Medicine. 2011.
- ↑ Johnson, Lorraine; Warren, Barbara (2011). "Evidence-Based Practice and Health Advocacy Organizations". The Journal of the American Medical Association. JAMA. 13 (306): 1443–1445. doi:10.1001/jama.2011.1405. Retrieved 31 August 2014.
- ↑ "Advocacy in the Era of Evidence – An International Summit for Consumer Advocates". US Cochrane Center. Retrieved 21 July 2014.
- ↑ "2013 CUE Annual Membership Meeting Presentations". US Cochrane Center. Retrieved 21 July 2014.
- ↑ Walden, Rachel. "Consumers United for Evidence-based Healthcare Releases Online Tutorial for Healthcare Consumers and Advocates". Our Bodies Our Selves. OBOS. Retrieved 31 August 2014.
- ↑ "Conversations Learning Evidence Opportunities". US Cochrane Center. Retrieved 23 July 2014.
- ↑ "Serving on a clinical practical guideline panel". US Cochrane Center. Retrieved 23 July 2014.